Contact Me
This Zebra doesn\’t bite!
I would love to hear from you! You can contact me at…
~or~
you can leave a comment or question on the blog, and I will get back to you!
Zebra Love,
Katie
Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.
Comments (8)
soleil
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Hi there! Wondering who your EDS specialist is?
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AnnaMarie Vandewalle
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Hello! I was wondering what you do to help with your gastroparesis issues? I have been diagnosed with EDS, and you are truly an inspiration.
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Katie
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Hi there! Thank you for your kind words. For GP, I see a motility specialist at U of M. I take Domperidone when I have flares. I have to get it from Canada. I am working on decreasing carbs. Eating smaller amounts is also helpful, and when my GP is really bad, I try to stick to smoothies with protein until things calm down. I have actually found in the last couple of months that Shakeology is good for my gut and helps keep things moving. I love it!
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Rachel Miller
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Hi I’m Rachel. I have had POTS for 10 years but was just recently diagnosed with EDS. I have been very encouraged by your blog. When did you decide to start using your wheelchair? I have been progressively having more issues with pain and subluxations when walking but I don’t think I am “bad enough” for a wheelchair quite yet. How did you decide that was the best way to take care of you? I read your posts about your trip to Disney and a lot of your planning and decisions made sense to me. I just am not sure how to convince myself that those changes would help me and not be me “giving in” to EDS.
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Bill
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I just came across you interview with Deb Hart and it hit home as I have Gpa/mpa
Formerly know as wegners granulomatosis (vasculitis )
We need to get awareness out and your doing that about autoimmune illnesses through your website
Thanks Katie
Sincerely William Spakes
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Kayleigh
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Hi Katie,
My name is Kayleigh. I was looking at information regarding Ehlers Danlos and found your page. I’ve been battling chronic pain in my back for years and had shots alllll the way up and down my back in Mishawaka too. Six series I think total- 12-15 per time. Facet and tendon sheath injections. I have crappy ligaments I’m told. I’ve been pointed to researching this by PT. I don’t fall into any one category of it by my symptoms. I’m just sick of hurting all the time. I was wondering if you could tell me how you got diagnosed and found how to cope with everything. I’m thinking about having a serious talk with my PCP and starting some testing maybe? I’m sorry I’m rambling. Any info would be greatly appreciated. Thank you!
Hope you are well.
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Raju
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my email to [email protected] failed. Can you share your new email address?
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Katie
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Yes, [email protected]
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