Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

A Letter to one of the Best

Written by Katie. Posted in Ehlers-Danlos Appointments, Ehlers-Danlos Awareness, Inspiration, Thankful

Dear Dr. Lavallee,

I got your letter last week.  I think I smiled and cried at the same time when I read you were leaving your practice in South Bend and moving to a different practice in York, PA.  I immediately felt so happy for you but sad for us Michiana EDS’rs.  You have been there from the beginning, ever since I discovered I belong in this special club we like to call “zebras.” 

Hard is What Makes it Great

Written by Katie. Posted in Challenges, Ehlers-Danlos Appointments, Favorites, Inspiration, Memorable Experiences, Thankful

If you have been following, you know I had my chance to cross off one of my goals for the year last week, which was to work out with the incredible Dr. Lavallee.   Back in January I had asked him at my yearly EDS check-up if he would ever be willing to work out with me.  He laughed a little, I think taken by surprise, and said, “But I don’t think you need to learn many of the exercises I do…I think you are doing well managing your EDS so far on your own. “