Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.


Written by Katie. Posted in Family, Favorites, Goals, Memorable Experiences

I always said I wanted a tattoo. I just didn’t know what I wanted forever. It was that word, “forever” that got me every time I thought about it. What could I put on my body that would still mean something to me when I was 70? 100?

I liked the way a simple word looked. If you go to my Pinterest page, you will find that over the year, I had pinned a few word tattoos. Faith. Courage. Love.

But again, the “forever” was the thing that got me.

Benefit Concert Speeches: 2013

Written by Katie. Posted in Chronic Illness, Ehlers-Danlos Awareness, Family, Favorites, Fundraisers, Invisible Illness, Memorable Experiences, POTS Awareness, Writing

For documentation sake, the following are Allie and my speeches from the Life as a Zebra Foundation’s second annual, “An Evening With Chris Trapper and opener, Joshua Davis Trio, to Benefit Invisible Illness Research” held at the Kellogg Hotel and Conference Center on April 13, 2013.

My Interview with Acclaimed Singer-Songwriter, Chris Trapper

Written by Katie. Posted in Favorites, Fundraisers, Interviews

Last summer when I found out Chris Trapper had agreed to headline our 2nd Annual, Life as a Zebra Foundation Benefit Concert, I asked if he would be willing to let me interview him.  He immediately agreed.  Chris has been a source of support since even before we started the foundation.  He headlined our first benefit when Allie and I really had zero clue what we were doing.  Luckily, because of many people including Chris, it ended up being a very successful night.  Chris has done different interviews for us to help promote the concerts, and therefore the foundation.  He has been nothing but kind, open, generous, and encouraging as Allie and I work to hopefully make a teeny-tiny difference in this crazy, ginormous world, for a cause that is extremely personal to both of us.  Anyways, not only am I one of Chris’s biggest fans as a singer-songwriter, but I am one of his biggest fans when it comes to Chris as a person.

I hope you are able to join us at the benefit concert on April 13 to hear Chris Trapper’s beautiful music, and watch him mesmerize the audience as the expert performer that he is. If the benefit concert is not in the cards, do yourself a favor and check out his music…and check out his tour dates.  He may be coming someplace near you.  You won’t be sorry.

The following is my interview with Chris Trapper.