Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for June, 2011

More POTS in the News

Written by Katie. Posted in POTS Awareness

It seems I come across a lot more articles about POTS that are written in the UK, than the US.  I wonder why that is…Anyways, here’s the latest POTS article I found.  I tend to look for more info about POTS when I am struggling with it more myself.  I really hope that articles like this can continue to spread awareness.  Yay, Dr. Grubb!


Five For Friday 6/24/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • I love finding EDS and POTS success stories.  Here is a link to one of the latest uplifting stories I found…
  • Dentist appointment.  No cavities but I am too switch from using regular floss to using the floss picks so I am able to hold them with one hand.  I showed my dentist how I flossed with my hand that doesn’t have feeling and he suggested I switch to the picks so I can use my right hand only.
  • 3 days of Home Rehab.
  • 1 Day of PT.  On Thursday, I started using this….
A Pilates Reformer to help strengthen my core and prevent me from being so quad dominant.  It is my new torture chamber.  (Just joking, Katie!)  We do have a love-hate relationship so far though.  In all seriousness, I am always so thankful that Katie constantly tries to find new ways to challenge me and help me get stronger.

Guess Who\’s 1!

Written by Katie. Posted in Family


Miss Cecilia Jane turned one on June 5th.  We were not able to be there for her actual birthday, but we were able to celebrate with her a couple of weeks later.  We missed Dad (too soon after surgery to travel), Brad (coaching at MSU Basketball camp), and Andy (at OCS).  Jake was quite the out-numbered one!?
As Told from CeCe’s point of view…

A Different but Similar Perspective

Written by Katie. Posted in Editorials, Favorites

My friend Ila, who also has EDS and Dysautonomia recently sent me this blog post she came across to read (If the rest of this post is going to make sense, then you should read the post from the link above first).  I read it a few times, and have thought long and hard about this person’s perspective.  I totally respect what this person has to say and her experiences with both Dysautonomia and EDS.  There are so many things she says that I found myself nodding my head in agreement to.  However, there are a few things from this post, that I would like to just bring a different perspective to.  I feel that we must keep in mind that when someone blogs, it is one person’s perspective, based on their personal and individual experiences.   

I, myself, have to realize that when I post about EDS and POTS, it is from my experiences, and my experiences only; MY symptoms, My struggles, My triumphs, and where I am on the very wide spectrum of both disorders.  I know there are going to be things I say along the way that people disagree with, but when I started this whole blogging thing, I knew that was all part of the “game.”