Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.


Written by Katie. Posted in Family, Favorites, Goals, Memorable Experiences

I always said I wanted a tattoo. I just didn’t know what I wanted forever. It was that word, “forever” that got me every time I thought about it. What could I put on my body that would still mean something to me when I was 70? 100?

I liked the way a simple word looked. If you go to my Pinterest page, you will find that over the year, I had pinned a few word tattoos. Faith. Courage. Love.

But again, the “forever” was the thing that got me.

50 Goals for 2014

Written by Katie. Posted in Goals, Lists

I believe in goals instead of resolutions! Here they are; 2014 style!

  1. Raise more money at this year’s benefit concert than last year’s for invisible illness awareness and research.
  2. Learn how to delegate better.
  3. Visit the Spisak’s in Cincinnati.
  4. See someone new in concert.

50 Goals for 2013: My Report Card

Written by Katie. Posted in Goals, Lists

My 50 goals for 2013.  It’s Judgement Day…

  1.  Make Life as a Zebra Foundation a 501 3c. Done!
  2. Raise more than $12,500 at our Invisible Illness Benefit on April 13, 2013 for Ehlers-Danlos National Foundation, National Dysautonomia Research Foundation, and Vasculitis Foundation. Yup! We were around $26,000 this year.
  3. Obtain sponsorship for the benefit. We had some awesome sponsors this year.

The Reveal

Written by Katie. Posted in Goals, My Creations, Zebras

One of Allie and my projects for the summer was to turn my train wreck of a basement into the Life as a Zebra office.

If you had gone into my basement two weeks ago, you most likely would have gotten swallowed up into one of the many black holes, never to be seen again.