Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

The Reveal

Written by Katie. Posted in Goals, My Creations, Zebras

One of Allie and my projects for the summer was to turn my train wreck of a basement into the Life as a Zebra office.

If you had gone into my basement two weeks ago, you most likely would have gotten swallowed up into one of the many black holes, never to be seen again.  

Moving On

Written by Katie. Posted in About Me, Challenges, My Creations

Dear Loyal Readers,

About five months ago, my great friend, Sebastian, who does web design came to me with the idea of me leaving Blogger, and creating my own website.  He explained that there were so many more opportunities out there by creating my own domain name, and starting my own website.

I laughed at him.  I blew him off and made it clear that I blogged for ME and I was comfortable with Blogger.  I had the mentality that, “If it ain’t broke, don’t fix it…”

Energy Smarts

Written by Katie. Posted in Ehlers-Danlos Awareness, My Creations, Other Appointments, POTS Awareness

I had my monthly Larry appointment today.  At my April appointment, Larry graded my Apollo 13 homework assignment he had given me after I spent my March appointment with him in serious meltdown mode tears about life in general.  After I received my A++, Larry gave me another assignment, which was due today.  My assignment was to show some kind of scale that represented things I COULD do on a 0%, 25%, 50%, 75%, and 100% energy day. 

This assignment was meant to help me reframe my thoughts.  So instead of getting upset and saying something like, “Oh my goodness, it’s a 25% energy day and I can’t dust the house,” I could instead look at it as, “It may be a 25% energy day but I CAN do a load of laundry, some floor exercises, and post on my blog.” 


Written by Katie. Posted in Ehlers-Danlos Awareness, Favorites, My Creations, Other Appointments, POTS Awareness

If you recall a while back, at my last monthly appointment with Larry (Sports Med doc and the “captain” of my medical team), I was given an old fashioned homework assignment.  After having a mental breakdown in his office, he gave me this task…To watch Apollo 13, and relate it to my EDS and POTS by creating any craft project I want.  All he told me was he wanted me to pay attention to the energy conservation theme. 

I watched the movie on Monday (yes, I had a whole month and procrastinated until the day before just like the old days) and ended up taking 6 pages of notes.  It took me 4 hours to watch the 2.5 hour movie because I kept rewinding to make sure I had info, space lingo, and quotes correct.  Then I went to work on my “crafting.”