Today I am thankful for my wheelchair, Wilemena.  We have had a love-hate relationship from the beginning but I am realizing more and more that she allows me to do normal things and gives me more freedom than if I didn’t have her. 

1.  Allie came home for less than 24 hours for a wedding. It was kind of a tease but at least she’ll be back in a week.  We had enough time for a picture though.

Today I am thankful for the other side of my family; all of the Jaskolski’s. I am thankful for my mother and father-in-law, Tom and Lee, my other sisters, Jill, Audrey,and Steph, and my other brothers, Chris, Daric, and Jay.  I am thankful for everything they do for us.

Today I am thankful for my diagnoses.  After many, many months I finally have my answers: POTS and Ehlers Danlos Syndrome.  I am thankful that the phase of figuring out what is wrong with me is finally over.  I am thankful that it only took me 11 months to get a POTS and EDS diagnosis since it often takes others years to be diagnosed with POTS and EDS because there is not much known about these disorders. 

After 11 long months, I have my first answer.  I went to Cleveland yesterday to get the results from my autonomic nervous system testing.  I went into the appointment with low expectations, most of all to protect myself.  I had been through so many other appointments to only find myself frustrated and disappointed when I was told that the test results did not show anything.  The doctors would tell me to celebrate the negative results but honestly this was hard when I still knew something was really wrong, and I didn’t know what it was.  I would leave many specialist’s office feeling like a crazy person when I was told my tests were normal, or that they came back “beautiful,” while I was still having crazy symptoms that made me sick.