Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 8/14/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 2 Days of PT. I started a new place for physical therapy…My break from PT is officially over. I am really encouraged by my new therapists and their knowledge of EDS. It sounds like a handful of fellow EDS’rs go there as well. Looking forward to learning more about how to manage this crazy, weird illness called EDS.
  • 1 Day of Home Rehab.
  • 6 month dental cleaning. Still no cavities but I had a little more bleeding, which my dentist thinks is due to EDS and the fact that the gums are made of connective tissue.

Five For Friday 8/7/15

Written by Katie. Posted in Five For Friday

Vacation week is over…: ( Trying not to be too sad…we made some pretty incredible memories.

1. Medical Stuff:

  • Not much going on, on the medical front this week. No docs, no PT, and I pretty much failed on home rehab while I was away. Sigh. Back at it TODAY. NO excuses.
  • Still waiting for my Domperidone. It is coming from England, to Canada, and then to me. Hopefully any day now…

Five For Friday 7/30/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab.
  • I take Domperidone for Gastroparesis. I called this week to fill my prescription at the compound pharmacy I use, and was told the US can no longer make it. SO weird. So, after many calls to U of M and the Canadian Pharmacy, it is now coming from England, then to Canada, and then to me. I should have it by the end of August. In the meantime, if I look pregnant, I am not. Just for the record.

Five For Friday 7/24/15

Written by Katie. Posted in Five For Friday

Short and sweet…I’m still recovering from Allie and Gabe’s wedding : )

1. Medical Stuff:

  • 2 Days of Home Rehab. PT starts again in August.
  • Prolotherapy with Dr. Cantieri in Indiana. He attacked my ribs with the needle, and I was never happier to feel all of those pokes…

Five For Friday 7/17/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 2 Days of Home Rehab.
  • Well, my break from PT has come to an end. I will be starting a new place next week. I have mixed emotions about this. Hoping it goes well…and the PTs are eager to learn.
  • I saw Larry on Tuesday. He mostly focused his manipulations (OMM) on my lower ribs since I have been struggling with them quite a bit lately. I left with my ribs wrapped with ace wraps. My body appreciates the compression when I have flares like this one. Larry also decided it was time for me to try out a new PT place…sometimes I need a kick in the butt to try something new, and he is giving me that kick…Love the tough love.