Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for June, 2011

A Grateful Letter

Written by Katie. Posted in Memorable Experiences

Dear Angels Who Watch Over Me,

I just want to say thank you for protecting me this morning when I was hit by an armed bank robber going 100 MPH during a high speed police chase.  I was a little freaked out when I counted 26 police cars whiz by me as I drove to a doctors appointment, and you must have known.  You guided me safely into the right lane where I stopped as more police cars sped past me. 

The Bright Side of Chronic Illness

Written by Katie. Posted in Editorials, Favorites, Positivity

Dr. Rosen asked me at my last appointment if I wished I was never diagnosed with EDS.  I was already emotional and actually got kind of angry at his question.  Without any hesitation, I snapped back that of course I wish I didn’t have EDS. 

After I left my appointment that day, it was as if Dr. Rosen’s question was haunting me.  I could not get it off of my mind.  I realized as I thought more and more about it that the answer to that question is not as black and white as I thought it was at the time.  I took that question with me to therapy.  I took it with me to Georgia.  I sent my Aunt Mada a Facebook message about it to see what her perspective was since she lives a full and active life with MS.  And then I thought about it some more. 

Ehlers-Danlos Conference 2011

Written by Katie. Posted in Ehlers-Danlos Awareness

Here is the tentative schedule for the EDS conference in Baltimore on July 21-23.  Hopefully handouts from sessions will be able to be downloaded and printed, since I do not think it is in the cards for me this year.  It looks like a lot of good info is being presented, and Dr. Grubb is even presenting about POTS.  I will definitely shoot for next year’s conference!

Five For Friday 6/3/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 1 Day of PT
  • 2 Days of Home Rehab
  • Prolotherapy round 5 was on Tuesday on my left hip, lower back/rib area, upper back, and neck.
  • I scheduled an appointment with Dr. Grubb for July 11.  When I saw Beverly, his NP, in April for POTS, she told me to call at the beginning of June to make a follow-up appointment with Dr. Grubb. Since I was told he had “more than a year waiting list” when I was trying to get into him in December, I did not think it would be possible to just call in June and get into him in July.  But it was super easy.  I could have seen him July 1st if I had wanted.  I guess when you are already an established patient, it makes a world of difference.

"Pain goes away. Pride lasts forever." ~unknown

Written by Katie. Posted in Prolotherapy

 

Round 5 of prolotherapy…check!  After six weeks, my Dad and I returned to Mishawaka for another treatment of prolotherapy.  I am such a “routine” person.  We have a routine down for on the way there, while I am prolo’d, and for on the way home.  Routine gives me comfort; especially on a day that is not the most comfortable.