Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for July, 2012

Hard is What Makes it Great

Written by Katie. Posted in Challenges, Ehlers-Danlos Appointments, Favorites, Inspiration, Memorable Experiences, Thankful

If you have been following, you know I had my chance to cross off one of my goals for the year last week, which was to work out with the incredible Dr. Lavallee.   Back in January I had asked him at my yearly EDS check-up if he would ever be willing to work out with me.  He laughed a little, I think taken by surprise, and said, “But I don’t think you need to learn many of the exercises I do…I think you are doing well managing your EDS so far on your own. “

It Takes a Village

Written by Katie. Posted in Medical Team

Recently I’ve had a few people ask questions about the doctors and therapists I currently see to keep my POTS and EDS manageable.  Whenever I type a list like this, I thank my lucky stars