I was excited to login to my blog, and see a personal note from Dr. Driscoll herself about the progress, and developments of her research.  Dr. Driscoll is a zebra herself who devotes so much of her time advocating for, and researching various diseases and the possible connections between the diseases of Multiple Sclerosis, Ehlers-Danlos Syndrome, POTS, and CCSVI, to name a few… 

A few weeks ago, my roommate and teammate from college sent me a Facebook message.  At the time she was 9 months pregnant, and still working as a nurse, which makes the fact that she took the time out of her life to write me such a special letter even more meaningful

(Sidenote: She had her baby TODAY! Congrats, Dana and John!) 

This survey has been circulating around FB and the Blogosphere…So in honor of promoting Invisible Illness Awareness I, too, am jumping on the bandwagon.

1. The illnesses I live with are: Dysautonomia/POTS (Postural Orthostatic Tachycardia Syndrome) and Ehlers-Danlos Syndrome, Type 2/3.

2. I was diagnosed with it in the year: 2010

I’m starting to think that maybe I should just re-name this “Six for Saturday.”  Hopefully next week, I will actually be able to post on Friday.

1.  Medical Stuff:

• 3 Days of Home Rehab (I did much better on the rehab front this week, and low and behold, my pain level went down).
• 1 session of PT.  I spent most of the time on the Reformer.  I am thankful Katie did not ease up on me (after the fact).  As I walked in looking like one tired, dragging, hot mess, I believe her quote was, “On the Reformer, you’ll love me later.”
• I had my monthly appointment with Larry (Sports Med doc/captain of my medical team).  He worked hard at putting my lower ribs back into place.  He also did some gentle neck manipulations.   The best part of the appointment?  We did not have to fill out any paperwork, or come up with any kind of life plan BECAUSE I am now living out all of the planning we did together throughout the past year.  It’s pretty amazing to see that all of our planning paid off.  The second best part?  Larry was beaming with pride that I am working again.  Last year at this time we both thought that working was not going to be possible for me anymore.  Thank GOD for him and my medical team.  I am so blessed.