Having one of those days…

Trying to keep myself from falling into the “feeling sorry for myself” mode.

I’ve been really struggling the last few days with the inconsistencies of these diseases.  Someone asked me if the pain was the hardest thing to deal with.  I told them the pain was nothing compared to the roller coaster of not knowing how I will feel the next day or even the next hour.  I crave consistency and routine; two things that are pretty nonexistent for me right now with EDS and POTS. 

Who knew a lip could cause so much trouble?  Sunday my top lip started hurting.  I thought I had burned my lips in the sun while I was out on my in-laws deck on Mother’s Day.  Monday morning my lip hurt a little more.  Monday night it felt like I had a pulse in my lip. This morning I woke up at the crack of dawn because I couldn’t sleep.  My lip “pulse” had turned into a full fledged heart beat.  I looked in the mirror and my lip was absolutely huge.  It looked like I got popped in the mouth.  It was so swollen and just flat out ugly. 

So what do you think I did?  Took a picture on my phone, and sent it to my sisters of course.  I knew they’d have good comments and we’d all have a good laugh.  Then I left for PT. 

Love.  This.  So. Much.

Thanks to a fellow EDS’er for posting it on one of the support groups, and for allowing it to be shared.  Please help spread Ehlers Danlos Awareness!

Stole this short questionnaire from a friend’s blog….

Outside my window: the sun is shining, and there are grass clippings on the sidewalk.  I hear the neighbor girls playing.

I am thinking: That my stomach hurts, and I need to get up and get ready to go see the Gooleys!