Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

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Ehlers Danlos in South Bend

Written by Katie. Posted in Ehlers-Danlos Appointments

After seeing Dr. Cantieri, we headed to South Bend.


My next appointment was with Dr. Lavallee, who is a sports medicine doctor, who also specializes in Ehlers Danlos.  He actually has Ehlers Danlos; the classical type, meaning it affects his skin and he also has the extreme joint hypermobility.  I had no idea what to expect from this appointment, except I was pretty excited to talk to a doctor who actually lives with what I am living with.

Five For Friday 1/21/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 1 PT session this week…my other appts were cancelled so I hit my exercises hard at home the best I could.
  • Got my new compression stockings.  They are thick like a sweater! Takes “compression” to a whole new level. 
  • Saw Dr. Cantieri for prolotherapy, Dr. Lavallee for EDS, and Dr. Halleran for POTS in Mishawaka/South Bend.
  • Was prescribed topical Testosterone and a topical pain med that I had to get made at a compound pharmacy.
  • Was prescribed Florinef for POTS.

Prolotherapy in Mishawaka

Written by Katie. Posted in Prolotherapy

Monday afternoon Brad and I headed to Mishawaka, IN for my three doctors appointments that were scheduled for Tuesday.  We made a last minute decision to go Monday for a few reasons…The weather was supposed to be nasty Tuesday morning…I knew that three appointments and a 2 1/2 hour drive home would already kick my behind…And we got a room at the Comfort Inn for 50 bucks. 


We pretended we were there only for pleasure and enjoyed a nice dinner Monday night at Papa Vino’s (first time there) and quick trip to Meijers since I forgot socks, which was followed by watching The Bachelor (Brad was oh so thrilled 🙂

Tuesday morning we headed to my first appointment with Dr. Cantieri.  Dr. Cantieri is an osteopathic doctor who specializes in complex pain problems.