GOOSEBUMPS!
I get tears in my eyes and goosebumps all over my body when I read this blog post. I have read it three times today.
A++
If you recall a while back, at my last monthly appointment with Larry (Sports Med doc and the “captain” of my medical team), I was given an old fashioned homework assignment. After having a mental breakdown in his office, he gave me this task…To watch Apollo 13, and relate it to my EDS and POTS by creating any craft project I want. All he told me was he wanted me to pay attention to the energy conservation theme.
I watched the movie on Monday (yes, I had a whole month and procrastinated until the day before just like the old days) and ended up taking 6 pages of notes. It took me 4 hours to watch the 2.5 hour movie because I kept rewinding to make sure I had info, space lingo, and quotes correct. Then I went to work on my “crafting.”
EDS Defined…Again
This is one of the best explanations I have read. I think EDS is described in more “layman’s terms” on this site than most, and describes the various types pretty well.
Happiness Is…
(click on the word…)
“Never let go of hope. One day you will see that it all has finally come together. What you have always wished for has finally come to be. You will look back and laugh at what has passed and you will ask yourself…’How did I get through all of that?'”
~Author Unknown
EDS Inservice
Last Tuesday, was the Ehlers Danlos Inservice that the PT student who I have been working closely with put together for all of the other therapists. She had asked me to come to show the Beighton Scale (one of the ways I was diagnosed), and to help answer questions and provide information from a patient’s perspective. ?I was so proud of her~She put so much work into the presentation. It is always surprising to me how little is known about EDS in the medical world. This is why I was extremely THANKFUL to this student who took the time to educate the therapists, to help “make the invisible, visible,” and hopefully help other patients get to a proper diagnosis in a much more timely fashion than it took me.
The slides below are from her PowerPoint. Let me be clear~this is NOT my presentation. I did not put together these slides. The PT student did, and she was nice enough to share these and all of her other resources with me.