There’s always an air of excitement when it is time for me to return to Toledo to either see Bev or Dr. Grubb.  I think it’s because it took so long for me to get into them, knowing that they are two of the best Dysautonomia experts in the world.  Call it hope, call it an understanding, call it an appreciation for doctors who care and “get it”…call it what you will, but it never seems like a chore to travel to Toledo to see these two incredible doctors and people. 

Topic: What’s something your doctor taught you?

Well, as I am sure it is true for many of you, I have many doctors.  Each one has taught me so much along the way as I have learned to manage both EDS and POTS.  Finding such a great team of doctors did not happen overnight.  It took a lot of travel, a lot of help, and a lot of patience.

I just realized that I never updated about my echo results.  After a week and a half of waiting, the report was finally located.  

I spent the day at the University of Toledo to see the wonderful Dr. Bev for my 6 months POTS check-up.

We drove 2 hours.  Waited 2 hours.  Saw Bev for 25 minutes.  And drove home 2 hours.

Usually I see Bev or Dr. Grubb for over an hour,

Two weeks ago I returned to the University of Toledo’s Heart and Vascular Center for my POTS follow-up.  When I had gone for my first appointment, I saw Bev (Dr. Karabin) and got on a specific treatment plan.  Three months later, I followed up with the famous, Dr. Grubb.  This time around, it was my turn to see Bev again.