Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

POTS in Art?

Written by Katie. Posted in POTS Appointments, POTS Awareness

"The Doctor and his Patient" by Jan Steen

I found it!  Ever since I saw Dr. Grubb last April, I have been searching for this painting.  Dr. Grubb had showed me this painting to illustrate how he believes this patient could be a patient with EDS type 3 and POTS.  This painting is from the Dutch realism period, and was painted by Jan Steen in the 1600’s.  The Dutch Realism period was a period when artists began to paint real life…even sick people. 

A Caring Comment

Written by Katie. Posted in Ehlers-Danlos Awareness, POTS Awareness

I was excited to login to my blog, and see a personal note from Dr. Driscoll herself about the progress, and developments of her research.  Dr. Driscoll is a zebra herself who devotes so much of her time advocating for, and researching various diseases and the possible connections between the diseases of Multiple Sclerosis, Ehlers-Danlos Syndrome, POTS, and CCSVI, to name a few… 

Gorilla Taming

Written by Katie. Posted in Challenges, Ehlers-Danlos Awareness, POTS Awareness

As you can see, I did not write the piece below.  I wanted to post it though, because I find it to be a brilliant description of learning to live life with a chronic illness. 

Each time I read the following piece, I think about my specialists (especially Dr. Grubb and Dr. Lavallee) who are encouraging me to tame my gorilla.