Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘2014 Benefit Concert’

Five For Friday 12/6/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab. My PT is in North Carolina so I was on my own this week.
  • It was a POTSy, insomnia week. It never fails. My monthly womanly visitor=insomnia and increased POTS symptoms. Not cool. Not cool at all.
  • I saw one of my OMM doctors on Friday. She did some intense cranial work which always makes me feel better. She is also really pushing for me to go gluten-free for six weeks to see how I feel. Are there any other EDS’rs or POTSies out there who have thoughts or experiences about this? My doctor believes it would be beneficial in calming my sympathetic nervous system down since I already know I have a gluten sensitivity, and with having POTS, my autonomic nervous system is already out of whack.

Five For Friday 11/15/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • No PT appointments because of parent-teacher conference nights. I was on my own this week.
  • 3 Days of Home Rehab.
  • My ribs were much more cooperative this week. I didn’t have to resort to ace wrapping them into place to survive. Thank. God.
  • I had an OMM appointment. My doctor commented on how “twitchy” my body felt as she worked on me. She explained that that is what it usually feels like when it is in a flare, which made sense to me since I have been flaring quite a bit lately. She made me promise I would get good rest and take time to recover this weekend.

Five For Friday 11/8/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 day of PT. A lot of elliptical, arm bike, squats, toe rises, light arm weights, and rib manipulations.
  • 1 Day of Home Rehab. I struggled a lot this week with back pain, fitting in workouts, and having late nights at school. One of the hardest things for me to figure out when something flares up on me and becomes really painful is this: a) Is it painful because I am not keeping the area strong enough, so therefore should I work out anyways? ~or~ b) Is it painful because I have done TOO much, my body needs rest, and if I work out, it will just make things worse? Oh, EDS. You can be so complicated.