I sooooooo can relate.  Many of you probably can as well.

As you can see, I did not write the piece below.  I wanted to post it though, because I find it to be a brilliant description of learning to live life with a chronic illness. 

Each time I read the following piece, I think about my specialists (especially Dr. Grubb and Dr. Lavallee) who are encouraging me to tame my gorilla.

This pretty much sums it up.  Honestly, the first thing I thought of when I watched this, was “Welcome to my world.”  Out of all the videos I have watched and things I have read, this one has rang the most true for me…And she talks about struggling with POTS as well. I love, love, love that she is working towards a marathon.  Makes me wish I could hug her.

This post is not meant to offend anyone.  But it is something that I constantly experience on a day to day basis.  I know in my heart people mean well.  And that they want to pay me a compliment.  But I also feel that at times people are trying to make sense of it all when I am told,  “But you don’t look sick.”  “But you look so great.”  “I’ve never seen you look better.” “But you look so beautiful.”