Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Random’

Whew!

Written by Katie. Posted in Random

What a week so far!  Prolotherapy round 4 was Monday in Indiana, I helped host a jewelry party yesterday (what was I thinking the day after prolo?), and I was in Toledo all day today for the POTS appointment I’ve waited six months for…Tomorrow I have PT and then I will get to updating if I don’t crash after therapy. 

Five For Friday 4/15/11

Written by Katie. Posted in Five For Friday

After a big week last week of Bob Seger and Philly, I knew I had to lay pretty low this week…Sunday and Monday I was a mess, but by Tuesday I was feeling a lot more human.  Hopefully these five won’t bore you to tears…Especially since I have only a couple of pictures.  Everything on my computer was wiped out yesterday.  I still don’t know why.  Sighhhhhhhhhhhhhhh…

1.  Medical Stuff: 

  • 2 days of PT.  Circuit work and elliptical work.  I tried to do the recumbent bike yesterday but I was “taching” too much (heart rate too high) so I had to stop.  At least I got in a good amount of strengthening before the POTS attack hit.
  • 2 days of home rehab.
  • I had my monthly appointment with Larry.  I turned in my Apollo 13 assignment, we talked about where I am at with my goals/progress, what to discuss with Dr. Cantieri on Monday and Dr. Grubb’s NP on Wednesday, and we figured out a plan for my continuing physical therapy.
  • After going over my sources of pain, we realized that EDS is affecting my jaw.  It keeps popping and subluxing, giving me some of my neck and jaw pain.  I am to wear my mouth guard more, and watch it.  If it gets too bad, I can be referred to a doctor who only works on TMJ problems.  I have also heard you can have prolotherapy on your jaw.  Hmmm… 
  • Larry wrote me a prescription for a new pain med cream I had to have made at the compound pharmacy to help with spasms; especially in my neck (since I HATE taking muscle relaxers).  He also wrote me a prescription for open toe compression stockings!
  • The good news about open toe stockings?  They are open toe.  The bad news about open toe stockings?  They only come in opaque, not sheer like my other ones.  I guess beggars can’t be choosers, right?  I am still waiting for them to come in the mail.

Blogcation

Written by Katie. Posted in Family

On a blogcation until Sunday/Monday.  I’m loving my time in Philly with my sisters, Mom, Jake, and my CeCe Baby!  Five for Friday will be late…Maybe Seven for Sunday this week?  We’ll see…I will post soon!

Peace and Love!

Roses and Thorns Round 2

Written by Katie. Posted in About Me

Rose:  There are a lot of fun things coming up that I am looking forward to.

Thorn:  I have junk in my chest and my Asthma is flaring up.

Rose:  The sun is shining today after quite a few gloomy days.

Thorn:  Since my ribs hurt, my PT did not allow me to do elliptical or treadmill work today.