WHAT. A. WEEK!

1. Medical Stuff:

• I was supposed to have PT but ended up having to cancel and go to urgent care instead because of ear pain, and the fact that it totally freaked me out that I woke up and could not hear out of my left ear. After three rounds with a peroxide ear gun, my ear was back to normal and I could hear again. Sighhhhhh…: )
• 2 Days of Home Rehab.
• I was in Indiana on Wednesday at the TMJ & Sleep Therapy Centre to pick up my new mouth orthotic that is meant to help stabilize my jaw and hopefully relieve my jaw, neck, and head pain I get from TMJ (and EDS). Well, it has not gone as planned. I tried sleeping with it two nights in a row, and it is just way too tight and painful. So, back to Indiana I go for adjustments when I can figure out a day I can get away again!
• I had my fifth infusion on Monday. Still very grateful to be able to have this treatment for POTS!

1. Medical Stuff: It was just one of those weeks when I felt like a lived at the doctor.

• 1 Day of Home Rehab. Treadmill! Side walking and backwards walking too…
• I saw Larry on Tuesday. He just makes going to the doctor a blast. We laughed so hard as he worked on my neck, head, and jaw. He’s good for the body AND mind. Those kind of doctors are gems.
• I had my second infusion on Wednesday. I am learning. Get it in my non-dominant hand, and I can still work on the computer. I did feel much better after both bags of saline.
• Brad and I traveled to Indiana Thursday night for a Friday morning appointment with a new doc; Dr. Klauer who specializes in TMJ and sleep disorders. Wellll, after four hours, a VERY extensive exam, and going over all of the results, we came up with a plan: 1) I need a sleep study to see if EDS is affecting my breathing when I sleep. 2) I have a severe deviated septum and bone spur and need surgery. (Sigh). 3) I am having a new splint made for my jaw pain that will take all of the pressure off the back of my teeth and mouth to allow my jaw muscles and ligaments to relax at night. Let me just say that they did an amazing job, and I really liked Dr. Klauer, but as many of you know, having chronic illnesses is NOT cheap.

1. Medical Stuff:

• I’m not gonna sugar coat. This has been a rough week with neck, face, upper back, and jaw pain. I missed two days of school and went on an unplanned trip to Indiana to get prolotherapy injections. I have been on my heating pad more than I have not. I have puked from the pain. I have backed off from rehab to try and get things to calm down. I am working on not freaking out.
• 1 Day of Home Rehab. No PT.
• Prolotherapy on Monday. I messaged my doc on Sunday about my pain and was in his office Monday morning. After 60ish injections, I was on my way back to Michigan. I’m extremely grateful for docs who will make time for patients, and will do what they can to try and get to the bottom of the pain.
• I saw Larry on Tuesday for OMM. I showed him the specific spot on my neck that has been giving me a lot of pain, including shooting pain into my left eye and lots of headaches. He is thinking it is occipital neuralgia, which is giving me ocular migraines. I did get some relief from him using gentle manipulation in that area. Ahhhh. Fun times…: )
• I saw my shrink on Thursday. It was a much needed appointment, and I walked out of the office with a much better perspective. And a much better ability to breathe in and out.