Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for May, 2011

The Queen Looks Like a Peep

Written by Katie. Posted in Family

Yes, I said that.  But I can’t take full credit after Allie said I looked like a peep on Easter.  But if it were between the Queen and I and our “peepness,” the Queen would have taken the cake for sure. 

So as I have already mentioned, we had a royal wedding sleepover, full of English Tea, Bangers, English Muffins, Strawberry Jam, and big, beautiful HATS!  The hats in themselves warrant their own blog post.  When it was decided that this sleepover was going to happen, my Aunt Laurie and Aunt Mada went to work on designing our royal masterpieces.  As you will see, each hat is a one of a kind.

Trapper, Avalanche, & Pure Kindness

Written by Katie. Posted in Favorites, Memorable Experiences

I realize my posts lately have been a lot of copying, pasting, and redirecting you all to other sites.  As I am trying to spread awareness for Ehlers Danlos Awareness month, I have also been battling an intense amount of fatigue, tachycardia, headaches, brain fog, neck pain, and have therefore, been honestly having some pretty emotional and frustrating days.  Thus, my posts have been pretty short recently. 

…BUT what’s my mantra?  “This too shall pass!”

I have wanted to post about my weekend since Sunday, but I knew it would be best if I waited for my body to start behaving better, so I could actually write coherently. 

Setting the Record Straight

Written by Katie. Posted in Ehlers-Danlos Awareness

The following is a link to various myths and facts about Ehlers-Danlos Syndrome.

http://www.ehlersdanlosnetwork.org/myths-facts.html

For the record, if anyone happened to catch the House episode recently about Ehlers Danlos, it was NOT an accurate depiction of the disease.  One woman’s blog I follow, wrote about the episode, and I found that her feelings about it happened to echo my thoughts as well.