Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

50 Goals Progress Report 10.5 Months In

Written by Katie. Posted in Goals

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1.  Go back to work. I did! I’m working Monday-Friday until noon.

2.  Floss everyday.  I use floss picks inconsistently.  I must become more consistent since EDS affects my gums.

3.  Eat more vegetables.  Still doing better.  I am getting in a lot of salads.

4.  Help more people with EDS and POTS awareness; especially people who have either disorder. I have been updating my website with things I have learned along the way.  I have received some positive feedback from other EDS’rs, POTSies, my family, and some friends that the information has helped them learn and understand the disorders too.  I’m still learning too!
5.  Be able to stand up for most of the U2 concert when we go in June.  Yup!  I wrote about it here.
6.  Find a way to exercise regularly.  Walking?  Swimming?  Pilates?  Therapy and home rehab right now are my main sources of exercise with the recumbent bike, small amounts of Elliptical and treadmill work, a lot of strengthening exercises, and the Pilates Reformer.  I still would like to get swimming and TRY spinning.
7.  Choreograph a dance. Not yet.  I have decided that I also want Allie to be here to help me.  Hopefully over Thanksgiving break.  I already have a song picked out.

8.  Convince my Dad to paint us a picture for our home. Not yet.

9.  Finish the kitchen. Still on hold until we can work it into the budget.

10.  New closet doors.  Only one more set to install.  Go Brad.

11.  Landscape!  Nope. Our yard is still a hot mess.

12.  Decide about prolotherapy.  I will have my 9th treatment on Friday.

13.  Meet Lisa Gigliotti.  I met Lisa May 3rd at Schuler’s Bookstore.  She has changed my life. 

14.  Continue date nights every Thursday night.  Still going strong! 

15.  See someone new in concert (besides U2)… I saw Chris Trapper and Colin Hay.  I wrote about it here.

16. Continue posting regularly on my blog, and learn how to give my blog a makeover.  I’m still posting regularly, although I miss posting more substantial posts, but at this time, I’m doing my best with the time/energy combo that I have.  I revealed the new website in August.

17.  Figure out a plan for starting a family.  Siggggghhhhhh. That sums that one up.

18.  Read more books for pleasure. I’m reading Lisa Gigliotti’s 3rd book right now.  Beautiful and inspirational.

19. Go to the Ehlers-Danlos National Conference in Baltimore in July. I decided it was just not in the cards for a variety of reasons.

20.  Spend less money on eating out.  We still need improvement, but I am becoming the restaurant coupon queen.

21.  Learn how to cook more meals. Since I have gone back to work, not so much.

22.  Get out of my cervical collar for good! I am wearing it less at this point thanks to prolotherapy and PT.  I now only need it once in a while. 

23.  Finish contacting all gymnastics clubs in the country about special needs classes for Gymnastics Doctor Autism Foundation.  This is still on hold until more contact information can be obtained.

24.  Go to Silver Bells.  I have to wait until the end of November. 

25.  See Dr. Grubb.  I saw Dr. Grubb in July.  You can read about my visit here.

26.  Find a new PCP I love.  After a lot of research, I did find one, but then he recently moved to North Carolina, so I am now back to square one.

27.  Decorate our walls throughout our house.  No, but I have a plan.

28.  Visit Kristen, Jake, and Cecilia in Philly.  I went in June and in August.

29.  Spend a lot of time at the beach this summer.  I gladly fulfilled this goal.  I miss those carefree, beach days.  They are good for the soul.

30.  Eat more anti-inflammatory foods.  I’m doing better but I would not say stellar.  I need to limit my gluten.  Too much gives me GI problems.

31.  Take my supplements regularly. Failing at this.

32.  Use more coupons.  Much better!  Just once, I want to do an Extreme Couponing grocery trip.

33.  Get life insurance.  Yup, Brad did.  I guess that makes us real adults now.

34.  Start a will.  Not yet.

35.  Have a big send off for Andy when he departs for basic training and OCS without having too severe of a mental breakdown.  This was a SUCCESS!  I only had a minor meltdown.

36.  Buy Skechers Shape Up Boots. The word on the street is they are GREAT for people who have both EDS and POTS. I got the shape up shoes.  I actually had a hard time getting used to them.  They made me feel like my ankles were constantly rolling.  I’ve only worn them twice.  I’ve gone back to my Mizunos.

37.  Officially join St. John’s Student Parish.  Brad and I became official members in January.

38.  Have a garage sale. I’m organized and ready to price, but I just don’t think it will happen before the end of the year.

39.  Celebrate my 30th in a healthy, happy way! I am happy to say that it was not only happy, but much healthier than last year.  So many people made it special and I am thankful for that.

40.  Say “I Love You” more and give more hugs to all of my loved ones.  Yup.  Rockin this goal because I love it.

41.  Make friends with our neighbors.  Not yet.  I want to tell them that we really are friendly!  We just have a private street, I guess.  My plan is to take our neighbors Christmas cookies.  Maybe that will do it.

42.  Go away somewhere special with Brad for a few days, just us.  Dreaming of an up north getaway for a few days in December. 

43. Take more pictures.  Yup.  I desperately need to clean out my camera!

44.  Learn how to make my Dad’s spaghetti sauce.  Not yet.  I plan to videotape this on our Flipcam.

45.  Learn something creative like sewing, jewelry making, or card making. I have decided that I put the little creativity I have into writing and I am okay with that. I would love to get into photography though.  I’m currently shopping for a SLR.

46. Organize the basement.  This has regressed since we went back to work.  Maybe over Christmas break?

47. Dama-Herner Summer Vacation.  We had a blast.  Cannot wait until next year.

48. Walk up to receive communion at church regularly. I’ve come so far on this one.  Even reading that I made this a goal puts a lot in perspective for me. 

49. Get better at recycling everything that can be recycled.  I have come a long, long way, both in my classroom and at home.

50. Pay the kindness forward that has been shown to me.  A lifelong work in progress!  This will never be a goal I will just be able to check off.