Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Author Archive

I Am Trying…

Written by Katie. Posted in Challenges

Today was what you would call a no good, very bad day.  I realize some days are going to be like that and you just gotta roll with the punches.  But today there seemed to be a LOT of punches.  And a LOT of rolling. 

Moving On

Written by Katie. Posted in About Me, Challenges, My Creations

Dear Loyal Readers,

About five months ago, my great friend, Sebastian, who does web design came to me with the idea of me leaving Blogger, and creating my own website.  He explained that there were so many more opportunities out there by creating my own domain name, and starting my own website.

I laughed at him.  I blew him off and made it clear that I blogged for ME and I was comfortable with Blogger.  I had the mentality that, “If it ain’t broke, don’t fix it…”

Why \”Life as a Zebra?\”

Written by Katie. Posted in Uncategorized

I have been told I am now a zebra.

Why a zebra?

In medical school, students are taught to diagnose patients based on the condition that’s most likely. This idea goes along with the saying: “When you hear hoof beats, think horses, not zebras.” The horses are the likely explanation, while the zebras are less likely. A medical zebra, then, is a person with a rare medical condition.

I think this is why I spent months seeing doctors. Most were thinking horses, rather than zebras…until finally I found myself in Fort Wayne where a doctor realized I was truly a zebra rather than a horse.

I was then sent to a few more doctors, where I was finally diagnosed with Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome.

I will forever be thankful for the doctors who were willing to think outside of the box, and recognize my stripes.
 

Zebras Make Hoofbeats Too.™

Done and DONE!

Written by Katie. Posted in Challenges, Random

I did it.  After my previous post this week about writer’s block, I finally submitted my first piece of writing in a contest.  Who knew 300 words or less would give me so many new gray hairs?!  Who knew that writing 300 words would take 6 hours today, and multiple attempts in the last month?