Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

My Say

Written by Katie. Posted in About Me, Challenges, Favorites, Memorable Experiences

I feel like there is a time and a place to tell certain parts of your “life story.”   Sometimes, the time just does not seem right.  I have realized that this is okay, and often, the time will present itself when it is right and meaningful.  That is what happened to me this week.

When I was 17, something happened to me that changed my life forever.  I have always wanted to keep this part of my story

Back to Me

Written by Katie. Posted in About Me, Challenges, Writing

I am sitting here at a website work meeting with my amazingly talented web designer, Sebastian, and I am realizing I have been quite the blog slacker the past couple of months. I have been telling myself, it was all because of the event, but I came to the realization today that I have just been using that as a crutch. A flat out excuse.

I mean, I really have not had

The \”Speeches\”

Written by Katie. Posted in About Me, Ehlers-Danlos Awareness, Favorites, Fundraisers, POTS Awareness

For documentation sake, here are Allie and my speeches from “An Evening with Chris Trapper to Benefit Invisible Illnesses,” which was held on April 14th at Lou and Harry’s Sports Bar and Grill.

Katie’s Speech:

“Starting to feel better, so bring on the weather I feel I’ve prepared for anything…

We are the ones who are never afraid, We need no rehearsal to dance. We’re well aware this may be our last chance,

So bring on the avalanche.”

 That was an excerpt from one of Chris’s songs, “Avalanche.”  For the last two years I have been learning how to face my Avalanche.  And you know what? The fact that I am able to stand on my two feet in front of you tonight instead of in my wheelchair, is one of the reasons for me to continue to fight to face my Avalanche.