Event Website!
Drumroll please…
Allie and I are so excited to announce that the event website is up and running!
Invisible Illness Benefit Event Updates!
Happy National Rare Disease Day everyone!
We have been working night and day trying to get everything up and running for the event!
We are so excited to announce that you can now buy tickets at:
A Dream Realized
It all started as a dream.
And then the dream slowly turned into a ginormous goal.
And then the dream that had become the goal, finally became a reality this week.
A Memorable Day in South Bend
Two Thursdays ago, Brad and I headed to South Bend to see Dr. Lavallee. It had been a whole year since my last visit with him. I was not only ready to discuss a bunch of EDS things, but I was really looking forward to spending some time with Dr. Lavallee, himself.
Clarifying
As I think about the post I just published, something is bothering me. I feel like I need to back up a bit, because I feel like I made “exercising” with POTS and EDS sound like such a simple thing to do. And if you have POTS and/or EDS, you know that it is definitely NOT easy.