Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Invisible Illness Benefit Event Updates!

Written by Katie. Posted in Ehlers-Danlos Awareness, Fundraisers, POTS Awareness

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Happy National Rare Disease Day everyone!

We have been working night and day trying to get everything up and running for the event!

We are so excited to announce that you can now buy tickets at:


Please help spread the word!

We are also working hard to get the flyers finished, and the event website up and running.  Our goal is that the website will be up by the weekend, at the latest.

A lot of people (especially out-of-towners who are unable to attend) have asked if they will be able to make donations.  We WILL have a “donate” button on the website, for anyone who is interested in donating to the following three charitable organizations: Ehlers-Danlos National Foundation, National Dysautonomia Research Foundation, and the Vasculitis Foundation.

Also, on Friday, March 2 at 11:15 AM EST/8:15 AM PST, you can listen to Chris Trapper live on the radio with KZSC Morning Show host Sleepy John. It’s sure to be a good time! http://www.kzsc.org/

Finally, Allie and I feel so grateful by the supportive and loving response we have received so far.  We love you all and thank you from the bottom of our hearts.

We hope you can join us on Saturday, April 14th!


Katie & Allie xoxo

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