Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Setting the Record Straight

Written by Katie. Posted in Ehlers-Danlos Awareness

The following is a link to various myths and facts about Ehlers-Danlos Syndrome.

http://www.ehlersdanlosnetwork.org/myths-facts.html

For the record, if anyone happened to catch the House episode recently about Ehlers Danlos, it was NOT an accurate depiction of the disease.  One woman’s blog I follow, wrote about the episode, and I found that her feelings about it happened to echo my thoughts as well. 

This is all I got…

Written by Katie. Posted in Ehlers-Danlos Awareness

I came across a couple of interesting blog posts by eye doctor, Diana Driscoll about EDS and POTS, and the possible MS connection.  You can read them here.  (It makes more sense to read the second one first and then scroll up to read the first one.)