Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 10/2/15

Written by Katie. Posted in Five For Friday

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October! The month I turn another year older! Bring it on : )

1. Medical Stuff:

  • 1 Day of PT. We discussed how I am doing and decided to try one time per week, while continuing my home rehab program. If I begin to “crash” I will go back to twice a week.
  • 2 Days of Home Rehab.
  • One of my OMM docs moved and opened her own practice. Monday, I saw her for the first time at her new location. Her gentle hands and cranial manipulation were able to calm down my head and jaw pain. That is worth the farther drive if you ask me.

2. October has been declared Dysautonomia Awareness Month in Michigan by Senator Zorn. One amazing individual worked hard to see this through, and has asked that I go with her to the Senate to accept the resolution. I am touched, honored, excited…it is a step in the right direction for a lot more work that must be done! Well done, Kim!

3.  Saturday, my two cousins and Allie came to Lansing for a Madonna themed party in Lansing. When we hear “theme,” us girls do not take it lightly. We each put together a different Madonna look…cone boob Madonna, goth Madonna (me), and Like a Virgin Madonna. Allie and I only stayed an hour at the party because we knew being out too late would make for a hard week ahead. Well, when my cousin got home an hour after us, she had the WINNING, Madonna, Rebel Heart tour, tickets in her hand! She took me with her on Thursday and it was incredible. It was my second Madonna show, and was nothing short of amazing with the dancers, props, outfit changes, singing, and the fact that Madonna is 57 and FIERCE….As a child of the 80’s, I was in heaven.

4.  Chris Trapper, who has performed at all four of Life as a Zebra Foundation’s benefit concerts so far surprised me on Wednesday with a mailed package of four of his new CD’s and a GO ZEBRA NATION card. I am reminded often that we would not be able to carry out our mission without loyal supporters like him…and his new album rocks. It made my day.

5. With the frustrations that come with our new state mandated teacher evaluation rubric, I am trying hard to keep my focus and energy on what I believe in; the kids and only the kids. I have a great class this year. They each come from such different backgrounds. They are each unique in their own special way. They each have their own talents. They each bring valuable qualities to our classroom family. They are NOT testing robots and I refuse to treat them as such. Rant over. Sigh…

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