Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 5/25/18

Written by Katie. Posted in Five For Friday

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1. Medical Stuff:

  • 1 Day of PT. LOTS of light walking on the treadmill. LOTS of scap and core strengthening.
  • Brad and I are killing it! We walked a mile and a half every night this week.
  • 1 Day of Home Rehab.
  • 1 Infusion.
  • 1 Acupuncture appointment.
  • SO Busy. SO tired this week.

2. It was a ZEBRA week for sure!

Senate & House:

So grateful to announce that for the fifth year in a row, both the Senate and the House unanimously adopted resolutions declaring May 20-26, 2018, Invisible Illness Awareness Week in the State of Michigan! Thank you Senator Curtis Hertel Jr. and Representative Tom Cochran for working with our foundation and for your leadership and support on this! Awareness and education are key to bringing visibility to invisible illnesses! #invisibleillnessawarenessweek2018 #senatorhertel #repcochran #grateful #zebranation #lifeasazebrafoundation

Image may contain: Tom Cochran and Katie Dama Jaskolski, people smiling, people standing, suit and indoor
3. Social Media Campaign for Invisible Illness Awareness Week! We need YOU! We NEED your stories!
Here’s the project:
Please send us your answers to the questions below, along with a photo of yourself to be shared on our Facebook Page for Michigan’s Invisible Illness Awareness Week! Anonymous submissions are also welcome! Submissions can be sent to us through Facebook Messenger or to [email protected], and we will include it in our awareness album on our Facebook page. There is no deadline! Send them in anytime!

1. What invisible illness(es) do you have?
2. What do you want people to know about living with an invisible illness?
3. What is the best way to support you or others living with an invisible illness?
4. Who/what makes up your support system?
5. What gives you hope or strength?

Head on over to to Life as a Zebra Foundation’s Facebook Page to check out our awareness slides and stories!
4. Zebra Day 2018!
The 7th annual Zebra Day is in the books! Of all the awareness efforts Life as a Zebra takes on, this one of my very favorites. Yesterday, we talked to K-3 students about the 6 main life lessons that living with invisible illness has taught us: kindness, respect, perseverance, making good choices, not judging a book by its cover, and standing up for yourself and others. Nothing warms my soul more than kids yelling “KIND IS COOL” at the top of their little lungs!
Image may contain: 3 people, including Arthur L.A. Ray and Katie Dama Jaskolski, people smiling, people sitting, people standing and indoor
5. I love this. I think it’s perfect for Invisible Illness Awareness Week.
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