Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Invisible Illness Event Week Updates

Written by Katie. Posted in Fundraisers

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We are 6 days out until our big fundraiser featuring Chris Trapper!  The excitement is building!  Here are the latest updates:

  • We will be having a silent auction with some pretty sweet stuff, from 6-7:45.  Autographed pictures, facials, festival tickets, rounds of golf, wine, restaurant gift certificates, etc…At this time we are able to accept cash and checks, and we are working on getting the credit card system up and running by Saturday.  There is also an ATM at Lou and Harry’s.  All proceeds made from the silent auction will be split among the three charities: EDNF, NDRF, and VF. 
  • We will also have zebra t-shirts for sale for anyone interested.  The money made from the t-shirts will also benefit the three charities. 
  • We will have informational tables set up with information about EDS, Dysautonomia, and Vasculitis.
  • Allie and I are working on our “speeches.” My hands are getting sweaty just thinking about it. 
  • Lou and Harry’s staff will have scanners that will scan your ticket at the door to allow entry.  If you need your tickets re-emailed, let Allie or I know.  Also, anyone 21 and older will be required to wear a wristband since it is an all-ages show. 
  • As for press this what I know, at this time:  
    • The fundraiser will be featured in City Pulses’s Calendar of Events.
    • I will be interviewed tomorrow, April 9, by Melik Brown, on his show “Time Slot.”  You can listen to the interview live over the internet here: http://www.ustream.tv/channel/time-slot-2x.  It will then air on local TV on Wednesday, April 11, on channel 16.
    • Chris Trapper will be on John Bommarito’s show on 107.1 (Ann Arbor) on Friday, April 13th at 2:00.  John will be asking him about the event so tune in if you can!
  • We are now offering student ticket pricing!  College students, come to Lou and Harry’s on Chandler Road (in advance or on day of the event) to purchase 1/2 price tickets at only $15! One ticket per ID, please.
  • The hot, local band, Avon Bomb, will take the stage at 10:30 at the conclusion of the event!  Your ticket covers this band as well.
  • We still need a videographer!  Anyone out there willing and able?  Email me if you are interested.  The purpose of videotaping is to be able to post the event on YouTube to continue to raise invisible illness awareness.   

After months and months of hard work by many, it is crazy that we are less than a week away.  We hope you are excited!  We are!

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