Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.


Written by Katie. Posted in About Me, Challenges, Chronic Illness

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Send tickets to sponsors.  Deposit sponsor checks.  Send ad reminders.  Constant Contact Email.  Update Foundation Website.  Link Blog to Foundation Site.  Pick up Panopolous Sponsorship on Tuesday.  Follow up on other sponsorships.  Schedule Kellogg Meeting to plan/order food & room design.  Design t-shirts and order.  Gather silent auction donations.  Gather awareness materials from foundations.  Billboard design to Kellogg.  Design program with the graphic designer and get the program to the printer. Confirm all sound equipment.  Create Powerpoint Presentation.  Press kits. Interviews.  Create Tax Deductible Templates.  Apply for a Raffle License.  Design & Order  Banners and Signs.  Think about speeches. Decorations. Silent Auction Bidding Sheets.  Silent Auction Baskets.  501 3c.

Guest Readers.  March is Reading Month.  Assess for report cards.  Parent-Teacher Conference nights.

Rehab. Rest. Nap. Water. Salt. OMM appointments.

POTS Flare.  EDS Thoracic Flare.

Blog. Promote.  5 for Friday. Answer emails.

Pick up prescriptions.  Schedule Dr. Grubb.

Taxes. Dust. Vacuum.

Function. Walk. Sleep. Stand.

Smile. Laugh. Love. Listen. Live.


(Thank God for having so much help and support.  I’m just feeling like I’m paddling upstream, and paddling fast…some days drowning.  I have always prided myself on getting back to everyone who contacts me quickly.  I apologize if I have not.  Please be patient with me as I figure out how to balance everything while getting my health back on track, and doing what I need to do to take care of myself so I do not get sicker.  Thanks for the love. You guys are the best.)

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