Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Appointments’

Five For Friday 11/8/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 day of PT. A lot of elliptical, arm bike, squats, toe rises, light arm weights, and rib manipulations.
  • 1 Day of Home Rehab. I struggled a lot this week with back pain, fitting in workouts, and having late nights at school. One of the hardest things for me to figure out when something flares up on me and becomes really painful is this: a) Is it painful because I am not keeping the area strong enough, so therefore should I work out anyways? ~or~ b) Is it painful because I have done TOO much, my body needs rest, and if I work out, it will just make things worse? Oh, EDS. You can be so complicated.

\”Stable:\” POTS in Toledo

Written by Katie. Posted in POTS Appointments, POTS Awareness

There’s always an air of excitement when it is time for me to return to Toledo to either see Bev or Dr. Grubb.  I think it’s because it took so long for me to get into them, knowing that they are two of the best Dysautonomia experts in the world.  Call it hope, call it an understanding, call it an appreciation for doctors who care and “get it”…call it what you will, but it never seems like a chore to travel to Toledo to see these two incredible doctors and people.