Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Awareness’

Fate, Family, Answers, & Genes

Written by Katie. Posted in Ehlers-Danlos Awareness, Family, Memorable Experiences, Questions

Ehlers-Danlos Syndrome is genetic.  Of the genes. Often inherited (though not always). This, I get.

What I have always wondered is if my EDS was in fact inherited, where in my family did I get it from?

My siblings don’t have it.  My parents don’t have it.  For three years, I have not known of anyone on either side of my family who has EDS.

Five For Friday 2/1/13

Written by Katie. Posted in Five For Friday

Happy February, friends!

1.  Medical Stuff:

  • 2 Days of Home Rehab.  I should have worked another day in there.
  • My OMM doctor had to cancel my Tuesday appointment due to sickness.  I am rescheduled for later in February.  Right now, my thoracic is in major need of some gentle manipulative medicine.  While I wait, I will rely on heat, strengthening, foam rollers, and my physical therapist.