Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Awareness’

30 Things: Invisible Illness Week 2013

Written by Katie. Posted in About Me, Chronic Illness, Ehlers-Danlos Awareness, Invisible Illness, POTS Awareness, Questions

Hi friends! Invisible Illness Week is fast approaching (September 9-15). I was asked to fill this out, and just before I was about to respond with, “I already did it two years ago,” I thought about it and realized a lot has changed in two years.  Therefore, some of my answers are different and some have remained the same.  I wanted to post it early, before school starts, since I am unsure how my body will respond or adjust to being back to work again.  So here you go. My 30 things.

Five For Friday 8/16/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I saw my OMM doctor this week, which was extremely needed. When all was said and done, I had 6 ribs put back into place, my OA joint in my neck was released, and my sacrum was put back into place. I would be in rough shape without my frequent OMM visits.
  • Talk about being in rough shape without certain doctors. I would be pretty lost without my psychiatrist, Dr. Rosen. We are going on 15 years together, and he has gone through every trial and triumph with me through the years (The good, the bad, and the UGLY). I saw Dr. Rosen on Thursday which was timely said I had a major case of the “all my siblings are far away again” blues. I always explain leaving my visits with him as being able to breathe in and out with clarity. I firmly believe that your body can’t be healthy if your mind is not.
  • I am currently taking a month off of PT to see how I do on my own.
  • 2 Days of Home Rehab. That number should be higher.

Five For Friday 6/21/13

Written by Katie. Posted in Five For Friday

Trying to get this post in before the new week starts! I feel like I have been busier since school has gotten out…Not sure how that happened, but I am trying to fit everything in and still be able to function. Needless to say, I’m making sure I am getting in those non-negotiable naps each day!

1.  Medical Stuff:

  • 1 Day of PT. Leg springs, arm bike, elliptical, floor work.
  • 2 Days of Home Rehab.
  • 2 Dance Practices. Half of the advanced routine to go and we will be ready to teach! Coaching begins Friday!

Benefit Concert Speeches: 2013

Written by Katie. Posted in Chronic Illness, Ehlers-Danlos Awareness, Family, Favorites, Fundraisers, Invisible Illness, Memorable Experiences, POTS Awareness, Writing

For documentation sake, the following are Allie and my speeches from the Life as a Zebra Foundation’s second annual, “An Evening With Chris Trapper and opener, Joshua Davis Trio, to Benefit Invisible Illness Research” held at the Kellogg Hotel and Conference Center on April 13, 2013.