Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Awareness’

Five For Friday 9/8/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab.
  • I had two doctor’s appointments scheduled, but ended up canceling. My body needed me to clear my schedule to get used to school, and I am so glad that I did. I’m making a mental note about this for next September.
  • One Labor Day Infusion. I spent my infusion writing! See below!
  • My body is struggling. That is just honest…and normal. September is my hardest month as I adjust back to school. So if you don’t hear from me much, you know why.

Five For Friday 5/26/17

Written by Katie. Posted in Five For Friday

Holy MOLY, this was a crazy week. But I’m still standing…Barely.

1. Medical Stuff:

  • Not proud of this, but this was one of those weeks where I had so much other stuff going on that I had to cancel PT and miss one day of Home Rehab just to survive/nap/rest instead. Blah.
  • 1 Day of Home Rehab. Lots of cardio and scap strengthening.
  • I saw my shrink on Thursday. It is always the days I think I don’t need him, when I realize I need him the most.
  • I am sleeping like crap. Too much going on.

Five For Friday 5/19/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • One Day of PT. My thoracic was super locked up. We don’t usually crack me, but that day was an exception.
  • No Home Rehab. This is not an excuse; there is never an excuse, but my week was insane and I didn’t get it in.
  • No doctors. Just a lot of everything else!

Five For Friday 4/7/17

Written by Katie. Posted in Five For Friday

April! Already one week in! Howwwwwwwwwwwww?

1. Medical Stuff:

  • No PT. My PT is in Mexico.
  • 3 HARD Home Rehab workouts. Trying to tone more; especially my back, thighs, and core.
  • Had my bi-annual echo to make sure all is good with my heart. EDS can affect anything so it’s important I get an echo every couple of years. I will get the report in a week. Oh yea, the hospital had a code red while I was there. Never dull.
  • I had an infusion Wednesday night. I made the most of it with trashy TV, warm blankets, and fun nurses to chat with.
  • I saw my shrink on Thursday. Are you gathering how sexy my spring break has been? ; )