Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Dr. Lavallee’

Five For Friday 6/20/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab: Recumbent Bike, and floor strengthening.
  • Zero doctors and zero physical therapy (my therapist is away right now).
  • I am officially scheduled to see Dr. Lavallee in July! It will be my first time seeing him since he moved from South Bend to York, PA. The road trip will be a lot but I am confident it will be worth it. That man is one of my heroes.

Prolotherapy Through My Eyes

Written by Katie. Posted in Ehlers-Danlos Appointments, Ehlers-Danlos Awareness, Medical Team, Prolotherapy

I started prolotherapy treatments in 2011.  I have lost count as to how many I’ve had. I have learned along the way that prolotherapy is controversial in the world of EDS. The first EDS doctor I saw after I was diagnosed actually did not recommend it, although he admitted he did not know much about it. At that time, I was having a horrible time keeping my back and head supported without a neck or back brace. That doctor actually diagnosed me with cranial instability and sent me on my way with a referral to a spine surgeon, telling me he suspected the surgeon would determine that I needed a skull to C-3 fusion.

A Letter to one of the Best

Written by Katie. Posted in Ehlers-Danlos Appointments, Ehlers-Danlos Awareness, Inspiration, Thankful

Dear Dr. Lavallee,

I got your letter last week.  I think I smiled and cried at the same time when I read you were leaving your practice in South Bend and moving to a different practice in York, PA.  I immediately felt so happy for you but sad for us Michiana EDS’rs.  You have been there from the beginning, ever since I discovered I belong in this special club we like to call “zebras.” 

This One Goes Out to My Docs #NHBPM Carnival

Written by Katie. Posted in Diagnosis Path, Ehlers-Danlos Appointments, Medical Team, Other Appointments, POTS Appointments

Topic: What’s something your doctor taught you?

Well, as I am sure it is true for many of you, I have many doctors.  Each one has taught me so much along the way as I have learned to manage both EDS and POTS.  Finding such a great team of doctors did not happen overnight.  It took a lot of travel, a lot of help, and a lot of patience.