Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Ehlers-Danlos’

Find a Place Inside Where There\’s Joy, and the Joy Will Burn out the Pain. ~Campbell

Written by Katie. Posted in Memorable Experiences, Prolotherapy

I thought this was a fitting quote for prolotherapy.  Whenever I lay on that table, I try to concentrate on the happy things that help me forget the burning, the crunching sounds, and the pain from the needles.  Sometimes I think about the beach, which is definitely one of my top three happy places.  Other times, I chat about all different topics with Brad and Dr. Cantieri, which usually helps keep my mind off of the pain. 

A Caring Comment

Written by Katie. Posted in Ehlers-Danlos Awareness, POTS Awareness

I was excited to login to my blog, and see a personal note from Dr. Driscoll herself about the progress, and developments of her research.  Dr. Driscoll is a zebra herself who devotes so much of her time advocating for, and researching various diseases and the possible connections between the diseases of Multiple Sclerosis, Ehlers-Danlos Syndrome, POTS, and CCSVI, to name a few…