Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Family’

Five For Friday 1/10/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Snowmageddon and the Polar Vortex cancelled PT.
  • I got in 3 days of Home Rehab.
  • I had prolotherapy Friday morning. (Post to come).
  • I saw the gyno Friday afternoon and scared the nurses because my heart rate was over 200 sitting. I am wondering if it was a response to being in pain from the prolo? Right now, I still have quite a bit of pain, but my heart rate is 70. Having POTS is so strange. You never know what your body is going to do. SIDENOTE: Remind me not to schedule other appointments on prolo days. Not sure what I was thinking on that one…

Five For Friday 1/3/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 day of PT. I met another patient with EDS!
  • 1 class of Zumba. An hour and a half of Zumba with Denise is no joke.
  • 1 day of home rehab.
  • I was supposed to go to Mishawaka (IN) to get prolo shots on Thursday but had to cancel because of weather. I’m rescheduled for Friday so fingers crossed that the weather cooperates.

Five For Friday 12/13/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab. I upped my incline on the treadmill by two levels this week to try to get more of a burn in my legs. I know that for me, the stronger my legs are, the better I do with both, pain control and POTS sickness. I’ll be back at PT on Monday.
  • I had my December Larry appointment on Tuesday, which included lots of cranial and jaw OMM. One of the residents came in to talk to me first. I could tell I was confusing the poor guy more and more, as I answered his questions. When he left the room to see if Larry was ready, I heard him say to someone, “I have never seen someone like her before. I think I need some help with this patient.” Ha! In my opinion, at least he could admit it, and asked for guidance. I think it would be better if more doctors had the courage to do so.  SIDE NOTE: I have experienced a lot of pain in my life, but jaw OMM has to be up there with the worst. Holy tears in my eyes. It is amazing though how much better I feel afterwards.

Five For Friday 11/29/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 day of PT. I spent my cardio time on the alter-G (anti-gravity treadmill). I was really proud of myself because I finally learned how to work it all by myself. That is some machine.
  • 2 Days of Home Rehab. Regular treadmill work with high inclines, floor exercises, light weights, balance work, and light stretching.
  • 1 Gynecologist appointment. That’s always a fun time, right ladies?