I got a text from Allie a little while ago that said, “Where’s an update slacker?”  My response?  “You don’t want an update.  It’s been a rough few days.” 


Then I thought if I only blog when things are good, then I am not being totally real about all of this, am I?  And maybe being “real” will show other EDS’rs or POTSIES that they are allowed to be human too.

So I’ll get right to the point. 

Check out the article, “Nothing Can Stop the Zebra” on Smithsonian.com

I have been told I am now a zebra.

Why a zebra?

After seeing Dr. Cantieri, we headed to South Bend.


My next appointment was with Dr. Lavallee, who is a sports medicine doctor, who also specializes in Ehlers Danlos.  He actually has Ehlers Danlos; the classical type, meaning it affects his skin and he also has the extreme joint hypermobility.  I had no idea what to expect from this appointment, except I was pretty excited to talk to a doctor who actually lives with what I am living with.