Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Inspiration’

Five For Friday +1 2/17/12

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 2 days of Home Rehab.
  • 1 Day of Physical Therapy.  I had my first day back after two months off.  Basically this appointment was focused on setting goals.  One goal that my PT and I made together is to be able to stand in place for a longer amount of time.  Standing in place for more than a couple minutes is one of the hardest things for me to do.
  • I had quite the POTSy week.  Maybe I am trying to do too much?  That’s what my body seems to be telling me.

Five For Friday 1/27/12

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 3 Days of Home Rehab.
  • I had my 6 month follow-up with Bev (Dr. Grubb) for POTS on Monday.
  • I had my yearly EDS follow-up with Dr. Lavallee on Thursday.
  • My ribs feel like they are going to collapse.  Not cool.  Not cool at all.

After a week of traveling, teaching, appointments, and rehab, this pretty much sums it up for me tonight…

Five For Friday +1 1/13/12

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • I had my monthly Larry appointment.  He did a lot of gentle manipulations; mostly on my neck.  The OA release he does is like magic.
  • I had my annual asthma check-up with Dr. Rawsthorne.  Everything checked out well.  My breathing tests looked great.  The plan?  Continue with Advair, Singulair, my rescue inhaler, and my nebulizer machine for emergencies.
  • 3 Days of Home Rehab.
  • My blood pressure has been a major roller coaster lately.  One minute it is normal, the next minute it is super low, the next minute, the machine can’t find it…I guess that’s Dysautonomia for you.  I am starting to get good at recognizing when I have fluctuations.  When it drops, I get really tired and have a hard time thinking and forming words.  This issue is on my list to discuss with Bev when I see her and Dr. Grubb at the end of January.