Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 1/27/12

Written by Katie. Posted in Five For Friday

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1.  Medical Stuff:

  • 3 Days of Home Rehab.
  • I had my 6 month follow-up with Bev (Dr. Grubb) for POTS on Monday.
  • I had my yearly EDS follow-up with Dr. Lavallee on Thursday.
  • My ribs feel like they are going to collapse.  Not cool.  Not cool at all.

After a week of traveling, teaching, appointments, and rehab, this pretty much sums it up for me tonight…

I have so much to blog about.  Now, I just have to find the time AND the energy.

2.  To get my rehab in, I had to pull out what I call, “The Big Gun” this week.  I save this t-shirt only for days that I really, really need it.  And go figure, it has never failed to get me through.

Tried my fierce face. Looks more like a constipated face.

Cheesy Face?


3.  A highlight of the week was that I finally got to meet one of my fellow POTSy friends, Steph in person when I went to Toledo.  Steph is a medical student at the University of Toledo, and is definitely a fighter.  We have been emailing back and forth, so when she found out I was coming for my appointment, she made the visit happen.  We were able to chat for about 45 minutes in the waiting room until I was called back.  How fitting for zebra friends to meet for the first time in a cardiologist’s office? I am excited to help Steph work on an Invisible Illness campaign for the University of Toledo.  I admire her determination to get the project going.  I only wish I had gotten a picture of the two of us!

4.  Congrats to Coach Izzo on his 400th win!  Spartan pride for life!

5.  I accomplished one of my 50 goals this week.  Brad and I visited The Grotto at Notre Dame.  It was a very personal, spiritual, and beautiful experience.

A couple of the candles I lit.


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