Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Life as a Zebra Foundation’

Five For Friday 4/8/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. I am beginning to incorporate more breathing exercises into my program. I do way too much breathing with my ribs and chest, and need to do more with my diaphragm.
  • 2 Days of Home Rehab. The usual.
  • I saw my shrink on Tuesday…such a valuable hour.
  • I saw Larry for our monthly appointment on Wednesday. He did a lot of OMM work on my first rib, neck, and jaw…over an hour and 20 minutes. And we did a lot of laughing. Those appointments are my fave.

Five For Friday 4/1/16

Written by Katie. Posted in Five For Friday

What. A. Week. I felt like a hamster on a wheel for most of it. Whew.

1. Medical Stuff:

  • 1 Day of Home Rehab. That is it for the week. Fail.
  • 1 Infusion at Sparrow. So far, so good. It has definitely been worth the three hours of sitting for each one.

Five For Friday 3/25/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Cardio, scap strengthening, and gentle manipulation on my neck.
  • 2 Days of Home Rehab. High incline treadmill work and floor strengthening with light weights.
  • I had an OMM appointment on Thursday. My jaw and sacrum were dislocated so she spent the time working on getting me back into place.

Five For Friday 3/11/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff: It was just one of those weeks when I felt like a lived at the doctor.

  • 1 Day of Home Rehab. Treadmill! Side walking and backwards walking too…
  • I saw Larry on Tuesday. He just makes going to the doctor a blast. We laughed so hard as he worked on my neck, head, and jaw. He’s good for the body AND mind. Those kind of doctors are gems.
  • I had my second infusion on Wednesday. I am learning. Get it in my non-dominant hand, and I can still work on the computer. I did feel much better after both bags of saline.
  • Brad and I traveled to Indiana Thursday night for a Friday morning appointment with a new doc; Dr. Klauer who specializes in TMJ and sleep disorders. Wellll, after four hours, a VERY extensive exam, and going over all of the results, we came up with a plan: 1) I need a sleep study to see if EDS is affecting my breathing when I sleep. 2) I have a severe deviated septum and bone spur and need surgery. (Sigh). 3) I am having a new splint made for my jaw pain that will take all of the pressure off the back of my teeth and mouth to allow my jaw muscles and ligaments to relax at night. Let me just say that they did an amazing job, and I really liked Dr. Klauer, but as many of you know, having chronic illnesses is NOT cheap.