Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Memories’

Five For Friday 8/7/15

Written by Katie. Posted in Five For Friday

Vacation week is over…: ( Trying not to be too sad…we made some pretty incredible memories.

1. Medical Stuff:

  • Not much going on, on the medical front this week. No docs, no PT, and I pretty much failed on home rehab while I was away. Sigh. Back at it TODAY. NO excuses.
  • Still waiting for my Domperidone. It is coming from England, to Canada, and then to me. Hopefully any day now…

Five For Friday 8/8/14

Written by Katie. Posted in Five For Friday

I’ve been on vacation all week in Saugatuck with my family…Playing catch up now!

1. Medical Stuff:

  • No PT since I was away.
  • I did one day of Home Rehab. Then my back decided to flare like crazy and I spent the rest of the week trying to calm it down with Ibuprofen, rest, ice, and my massage pillow.
  • Vacation sleep is amazing sleep. It was the first week all summer I have slept really, really well.

Five For Friday 6/6/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Had a breakdown since my ribs felt like they were on fire. My therapist did tons of gentle OMM, and it helped quite a bit. I left moving and breathing better.
  • 2 Days of Home Rehab.
  • My gastroparesis is still flaring. Time to cut out certain foods until it calms down.

Five For Friday 4/18/14

Written by Katie. Posted in Five For Friday

The 3rd annual is in the books! I will need to devote a whole post to the night…and figure out what words I can use to really express the emotions I continue to feel over the incredible generosity, love, and support we have received from so many who have embraced us and our cause. It is hard to put the grandiosity of these emotions into words, but I will try my best…I will try to get to work on that soon. I will also post Allie and my speeches.

1. Medical Stuff:

  • As expected, I became pretty sick after the event. I crashed hard. I had to cancel PT and I only got in one day of home rehab. I am thankfully slowly starting to feel better. But again, I do not want to complain. It was definitely worth the crash…
  • No doctors. This upcoming week, I am back at my intensive doctor and therapy schedule.
  • I’m sleeping a little better now…3:30 am has been my buddy this week so hopefully I will start sleeping through the nights again. Every single symptom is better when I sleep. I’m sure many of you can relate.