Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Perception’

Five For Friday 10/26/18

Written by Katie. Posted in Five For Friday

1.Medical Stuff:

  • 1 day of PT. My belly was feeling funny so we took it easier on the recumbent bike. I’m going to look into getting a prenatal cradle in the next week just to give my joints more support. Trying to be a proactive EDS’r as this babe gets bigger!
  • Had my glucose test, anemia test, dtap shot, and a heart rate and belly check yesterday with my OB. Things checked out really well. Keep cookin’ baby!

Gorilla Taming

Written by Katie. Posted in Challenges, Ehlers-Danlos Awareness, POTS Awareness

As you can see, I did not write the piece below.  I wanted to post it though, because I find it to be a brilliant description of learning to live life with a chronic illness. 

Each time I read the following piece, I think about my specialists (especially Dr. Grubb and Dr. Lavallee) who are encouraging me to tame my gorilla.