I got a text from Allie a little while ago that said, “Where’s an update slacker?”  My response?  “You don’t want an update.  It’s been a rough few days.” 


Then I thought if I only blog when things are good, then I am not being totally real about all of this, am I?  And maybe being “real” will show other EDS’rs or POTSIES that they are allowed to be human too.

So I’ll get right to the point. 

1.  Medical Stuff

• Prolotherapy round two was on Monday.
• 1 day of PT
• 1 day of Home Rehab
• POTS has been giving me fits since Wednesday.  My heart rate hasn’t been this up and down for a while.  Had a minor meltdown about it after feeling dizzy and feeling a lot of body heaviness and weakness.  My therapists pointed out that the trauma from the shots could have made my autonomic nervous system go haywire.  Also, it could be due to my cycle and/or not doing therapy for a full week (could 7 days cause enough deconditioning to give me worse POTS symptoms?)  Maybe it’s a combo of all 3? I definitely recorded this in my daily log.

Happy Rare Disease Day everyone!   I’m off to Mishawaka to celebrate with lots and lots of shots…or should I say injections 🙂

So today I got to therapy ready to get on the full body gym, and my PT pulled me into one of the exams room instead.  She said we were going to talk first today.  Uh oh.  She said she was watching me on Monday and was worried that I am overdoing it, and that we need to think more about pacing.  Ughhhhh, “pacing”…I have developed a strong dislike for that word ever since I was diagnosed.  She asked me how I have been doing after therapy and I was honest.  I said some days I feel great and do completely fine and other days I crash hard.  She asked me about how I was after Monday and I admitted that I went to Meijers afterwards (I was supposed to go straight home and rest), and by Tuesday morning I was throwing up and had to sleep during the day.  Busted.