Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Writing’

Five For Friday 8/11/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Back at it. Lots of cardio, strengthening, electrical stim, and OMM.
  • 3 Days of Home Rehab. Hard workouts. Different workouts. I’ve been so sore.
  • I saw Dr. Rosen on Tuesday. Talked about some med switches and the theme was the “grays” in life. Grays are super hard for me.

Q & A: My Current Exercise Regimen

Written by Katie. Posted in About Me, Ehlers-Danlos Awareness, Physical Therapy, POTS Awareness, Questions

I recently received an email from a Mom whose daughter has just been diagnosed with EDS and POTS.  She had questions about my exercise routine with POTS and EDS.  It made me think about how I have really neglected this blog the last few months.  I am honestly having trouble finding the time and the energy to keep everything updated, but I am going to try and do better.  I feel it’s important; especially for awareness and documentation sake.  When I think back to why I started this blog in the first place, one of the reasons was to document my journey for learning to live with EDS and POTS.  When I was really sick, I remember looking all over the Internet for blogs that did the same. I found such comfort in reading about other people’s stories that were so similar to mine.