Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

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Five For Friday 8/26/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 1 Day of PT.  That was an interesting session since it was right after I received my very scary certified letter  from the school district (See this post.)  Let’s just say, I have never pounded the peddles of the recumbent bike so hard.
  • 2 Days of Home Rehab.  Working on my stubborn lower scaps!
  • Faxed more medical records.  Office Max and I are becoming real tight.

By the Skin of my Teeth

Written by Katie. Posted in Challenges, Memorable Experiences, Thankful

I apologize for my post, “I am Trying.”  I realize that it was not fair of me to post such a vague entry, knowing full well that so many of my family and friends read.  I was so upset the other night, and I was not thinking clearly.  I had let my emotional brain overtake my rational brain.

Anyways, here’s the scoop, that sent me into a 2 day frenzy.

Being Your Own Advocate is a MUST

Written by Katie. Posted in Challenges, Diagnosis Path, Editorials, Memorable Experiences

The following article really spurred me to want to write this post.

http://www.aarp.org/health/conditions-treatments/info-06-2011/what-to-do-when-your-doctor-doesnt-know.html

I was reading it when Brad looked over at me and said, “What are you doing?  I didn’t even notice it but I was nodding my head repeatedly as I read the article.

I have been through some crazy times in my short 29 years, but nothing has ever compared to the extreme amount of stress I felt last year when the doctors could not figure out what was wrong with me.  When I think back, I wonder how I got through it still standing.