Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Q & A: My Current Exercise Regimen

Written by Katie. Posted in About Me, Ehlers-Danlos Awareness, Physical Therapy, POTS Awareness, Questions

I recently received an email from a Mom whose daughter has just been diagnosed with EDS and POTS.  She had questions about my exercise routine with POTS and EDS.  It made me think about how I have really neglected this blog the last few months.  I am honestly having trouble finding the time and the energy to keep everything updated, but I am going to try and do better.  I feel it’s important; especially for awareness and documentation sake.  When I think back to why I started this blog in the first place, one of the reasons was to document my journey for learning to live with EDS and POTS.  When I was really sick, I remember looking all over the Internet for blogs that did the same. I found such comfort in reading about other people’s stories that were so similar to mine. 

Overwhelmed

Written by Katie. Posted in About Me, Challenges, Chronic Illness

Send tickets to sponsors.  Deposit sponsor checks.  Send ad reminders.  Constant Contact Email.  Update Foundation Website.  Link Blog to Foundation Site.  Pick up Panopolous Sponsorship on Tuesday.  Follow up on other sponsorships.  Schedule Kellogg Meeting to plan/order food & room design.  Design t-shirts and order.