Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Done and DONE!

Written by Katie. Posted in Challenges, Random

I did it.  After my previous post this week about writer’s block, I finally submitted my first piece of writing in a contest.  Who knew 300 words or less would give me so many new gray hairs?!  Who knew that writing 300 words would take 6 hours today, and multiple attempts in the last month?

Gorilla Taming

Written by Katie. Posted in Challenges, Ehlers-Danlos Awareness, POTS Awareness

As you can see, I did not write the piece below.  I wanted to post it though, because I find it to be a brilliant description of learning to live life with a chronic illness. 

Each time I read the following piece, I think about my specialists (especially Dr. Grubb and Dr. Lavallee) who are encouraging me to tame my gorilla.

Good Times Around the Bend

Written by Katie. Posted in Challenges

Many people often comment on how positive I am.  I do pride myself on the fact that I usually can find a silver lining in hard situations, and I don’t take myself too seriously.

But tonight I am struggling. 

Not because I had a bad day, or a bad POTS appointment.  In fact, I saw Dr. Grubb today, and my appointment went well, and I have to say that Dr. Grubb truly is an incredible man. 

But sometimes life smacks you in the face and it is overwhelming. And exhausting. And you feel vulnerable and defeated.

Potpourri

Written by Katie. Posted in About Me, Challenges, Favorites

There’s a lot I want to blog about, but yet I don’t want to blog about.  I know that doesn’t make sense whatsoever.  My mind is one, big jumbled up mess.  I hope you all reading will bear with me, while my “jumbles” start to straighten themselves out.


So I am going to just type random stuff, because that is how I roll today.  Very, very random.