For documentation sake, here are Allie and my speeches from “An Evening with Chris Trapper to Benefit Invisible Illnesses,” which was held on April 14th at Lou and Harry’s Sports Bar and Grill.

Katie’s Speech:

“Starting to feel better, so bring on the weather I feel I’ve prepared for anything…

We are the ones who are never afraid, We need no rehearsal to dance. We’re well aware this may be our last chance,

So bring on the avalanche.”

 That was an excerpt from one of Chris’s songs, “Avalanche.”  For the last two years I have been learning how to face my Avalanche.  And you know what? The fact that I am able to stand on my two feet in front of you tonight instead of in my wheelchair, is one of the reasons for me to continue to fight to face my Avalanche.

Drumroll please…

Allie and I are so excited to announce that the event website is up and running! 

Happy National Rare Disease Day everyone!

We have been working night and day trying to get everything up and running for the event!

We are so excited to announce that you can now buy tickets at:

http://louandharrys11.ticketbud.com/invisibleillness

It all started as a dream.

And then the dream slowly turned into a ginormous goal.

And then the dream that had become the goal, finally became a reality this week.

Two weeks ago I returned to the University of Toledo’s Heart and Vascular Center for my POTS follow-up.  When I had gone for my first appointment, I saw Bev (Dr. Karabin) and got on a specific treatment plan.  Three months later, I followed up with the famous, Dr. Grubb.  This time around, it was my turn to see Bev again.